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Physical Disabilities Website Links

Arthritis

Arthritis Resource Center
http://www.healingwell.com/arthritis/
Community and information resource site to medical news, informative articles, patient stories, community message boards and chat rooms.

Arthritis Drugs Database
http://www.coreynahman.com/arthritis_drugs_database_nsaids.html
Arthritis medications arranged alphabetically by brand name; prescribing information, patient information, medline search.

Arthritis Foundation
http://www.arthritis.org/
The Website for this nonprofit organization provides useful information on treatments, advocacy, research, resources and events and programs occuring throughout the country.

Arthritis Source
http://www.orthop.washington.edu/arthritis
A multimedia resource provided by the University of Washington Department of Orthopaedics and Sports Medicine. Information on living with arthritis, surgery and treatments. Informative articles are written by Physicians and medical research professionals.

Arthritis and Glaucosomine Resource Center
http://www.arthritis-glucosamine.net/
Informative site about arthritis and glucosamine treatment featuring articles, newsletters, guides and search engine.


Back Injuries and Pain

Backpain: Common and Uncommon Causes
http://www.mayoclinic.com/invoke.cfm?id=HQ00297
General information with additional links provided by the Mayo Clinic.

Backpain Bibliography
http://www.backpainsolutions.net/book/bookbib.html
Bibliography of resources on treating back pain.

Ergonomics Program
http://keats.admin.virginia.edu/ergo/home.html
The University of Virginia provides these links to educational hypermedia and information about defining and evaluating ergonomic risks, creating ergonomically appropriate workstations and preventing work-related musculoskeletal disorders Cumulative Trauma Disorders (CTD's).

Evidence Based Medicine- Lower Back Pain
http://www.montana.edu/wwwebm/LowBackPain.htm
Some interesting links to scholarly source citation.

Google Directory of Back injury related sites
http://directory.google.com/Top/Health/Conditions_and_Diseases/Musculoskeletal_Disorders/Back_and_Spine/
Many sites.

Mechanical Low Back Pain
http://www.vhct.org/case1699/index.shtml
Text for online course at the School of Health Professions and School of Medicine, University of Missouri, Columbia.

National Clearinghouse of Rehabilitation Training Materials
http://www.nchrtm.okstate.edu/resources/b/back_injury.html
Many links to sites discussing surgery and treatment, lumbar injury and other back related issues.

Patient's Guide to Lower Back Problems
http://www.healthpages.org/AHP/LIBRARY/HLTHTOP/LOWBACK/backpain.htm
The anatomy, symptoms, diagnosis, and treatment of lower back pain.

RTW Planning for Workers with Low Back Injuries
Links

http://www.geocities.com/Carla023/links.htm
Links to sites of interest to employers and employees trying to cope with back pain.

Spine and Nerve Center - Harvard
http://neurosurgery.mgh.harvard.edu/lnkspine.htm
Many links pertaining to neurosurgery and spinal injury.


Bone Transplant

Lymphoma Information Network
http://www.lymphomainfo.net/lymphoma.html
Guide to Hodgkin's and non Hodgkin's Lympoma providing information and further links to resources on diagnosis, treatment and therapy for people suffering from these conditions.

Bone Marrow Foundation
http://www.bonemarrow.org/
Information, programs and services about bone marrow/stem cell transplantation.


Carpal Tunnel Syndrome

Carpal Tunnel Syndrome
http://www.orthop.washington.edu/hand_wrist/carpaltunnel/01
Well written introduction with diagrams about Carpal Tunnel Syndrome, created by the University of Washington Medical Center's department of Orthopeadic's and Sports Medicine.

Carpal Tunnel Syndrome; CTS1
http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?115430
Carpal Tunnel Syndrome and genetic predisposition. This article is provided by the University of Minnesota's Gene Therapy program. Bibliographic citations are linked to sources.

Eskind Biomedical Library Links
http://www.mc.vanderbilt.edu/biolib/services/pics/pathfinder.html?pathfinderID=73&call=links
Pathfinder site to information provided by Vanderbilt University library, this site includes links to clinical trials and recent reports.

Computer Related Repetitive Strain Injury
http://eeshop.unl.edu/rsi.html
Comprehensive guide to Repetitive Strain Injury with links to additional resources.

Spears & Macleod
http://www.spearsmacleod.com/links/c/carpal/
Commercial site with interesting reviewed links to information as well as articles.


Cerebral Palsy

American Academy for Cerebral Palsy and Developmental Medicine
http://www.aacpdm.org/home.html
This scientific society is devoted to the study of cerebral palsy, to promoting professional education for the treatment and management of this condition, and to improving the quality of life for people with Cerebral Palsy.

Center for Cerebral Palsy Spasticity
http://cerebralpalsy.wustl.edu/
Information on dorsal rhizotamy and other surgical procedures provided by St. Louise Children's Hospital and Washington University Medical School.

Cerebral Palsy: A Guide For Care
http://gait.aidi.udel.edu/res695/homepage/pd_ortho/clinics/c_palsy/cpweb.htm
This guide was created and is maintained by the Cerebral Palsy Program at The Alfred I. Dupont Institute and provides information on Cerebral Palsy, particularly in childhood through young adulthood. Types of Cerebral Palsy are give as is treatment and specific medical problems related to this condition.

Cerebral Palsy: A Multimedia Tutorial
http://hsc.virginia.edu/cmc/tutorials/cp/cp.htm
This tutorial was designed by the University of Virginia for parents and children. The causes and types of cerebral palsy are discussed here as are tools for living.

Cerebral Palsy: Ask the Doctor
http://www.about-cerebral-palsy.org/
Information and links pertaining to cerebral pasly, along with the opportunity to contact health professionals with questions pertaining to children and Cerebral Palsy. This not for profit site is sponsored by Lawyers Inc. PC, which might be why there is also legal information provided here.

Cerebral Palsy: Hope Through Research
http://www.ninds.nih.gov/health_and_medical/pubs/cerebral_palsyhtr.htm
This government sponsored site provides information on the history of the diagnosis of this disease, recent research, treatment available and additional resources. Site is maintained by National Institute of Neurological Disorders and Stroke, the nation's leading supporter of biomedical research on disorders of the brain and nervous system.

Massachusetts General Hospital Department of Neurology Cerebral Palsy Web Board
http://neuro-www.mgh.harvard.edu/forum/CerebralPalsyMenu.html
Forum provided by Massachusetts General Hospital. Free registration for those who wish to post to this site. (Registration is not needed by those wishing to just read postings.)

Medline: Cerebral Palsy
http://www.nlm.nih.gov/medlineplus/cerebralpalsy.html
A complete listing of research, scholarly and information sites related to Cerebral Palsy provided by the U.S.. National Library of Medicine and the National Institutes of Health. Includes information on clinical trials, coping with Cerebral Palsy, specific conditions such as hypertonia and spasticity, treatment and glossary.


Multiple Sclerosis

All About Multiple Sclerosis
http://www.mult-sclerosis.org/
"All About Multiple Sclerosis aims to provide accurate and comprehensive medical information about multiple sclerosis (MS) written in plain English by people with the disease. It contains a detailed description of multiple sclerosis, an archive of news stories about MS, an MS encyclopedia and a large links section containing hundreds of commented and rated links. It also has a list of famous people living with multiple sclerosis, personal accounts, poems and essays by people with MS and some downloadable shareware programs to raise money for MS research. You can also read my own personal story with MS. "

Infosci
http://www.infosci.org/
Simple but useful page of links.

International Multiple Sclerosis Support Foundation
http://www.msnews.org/
Non-profit service organization providing articles by physicians and information on medication, treatment and forums.

Medline Multiple Sclerosis
http://www.nlm.nih.gov/medlineplus/multiplesclerosis.html
A complete listing of research, scholarly and information sites related to Multiple Sclerosis provided by the U.S.. National Library of Medicine and the National Institutes of Health.

Multiple Sclerosis
http://medlib.med.utah.edu/kw/ms/
This site is designed as an introduction to multiple sclerosis for medical students and physicians in training. Site maintained by the Spencer S. Eccles Health Sciences Library. Includes patient video and recent research projects.

National Multiple Sclerosis Society
http://www.nmss.org/
The Society and its network of chapters nationwide promote research, educate, advocate on critical issues, and organize a wide range of programs. This site provides extensive links to articles and sites covering causes, symptons and diagnosis of MS, treatments, rehabilitation and relapses, research news, professional information and links and recent headlines.

NINDS: Multiple Sclerosis Information Page
http://www.ninds.nih.gov/health_and_medical/disorders/multiple_sclerosis.htm
This government sponsored site provides information on diagnosis of this disease, recent research, and additional resources. Site is maintained by National Institute of Neurological Disorders and Stroke, the nation's leading supporter of biomedical research on disorders of the brain and nervous system.


Muscular Dystrophy

Dystrophinopathies: Duchenne muscular dystrophy
http://www.neuro.wustl.edu/neuromuscular/musdist/dmd.html
This site is devoted to issues in dystrophinopathies including Clinical syndromes, Becker Cardiomyopathy, Cramps, Duchenne, Female carrier, Mental retardation, Microdeletion Outliers, Dystrophin & associated glycoproteins, Dystrophin gene, Mutations, Testing, Dystrophin protein and Genotypes & Phenotype Correlations. Site maintained by Washington University, St. Louis, MO.

Job Accomodation: Muscular Dystrophy
http://janweb.icdi.wvu.edu/media/MD.html
Information about job accomodations for people with Muscular Dystrophy. This page is aservice of the Office of Disability Employment Policy of the U.S. Department of Labor

Muscular Dystrophy USA
http://www.mdausa.org/
National organization page with links to recent research, clinics and services, community programs and forums.

NINDS Muscular Dystrophy (MD) Information Page
http://www.ninds.nih.gov/health_and_medical/disorders/md.htm
This government sponsored site provides information on diagnosis of Muscular Dystrophy, recent research, and additional resources. Site is maintained by National Institute of Neurological Disorders and Stroke, the nation's leading supporter of biomedical research on disorders of the brain and nervous system.

RehabInfo Network
http://www.rehabinfo.net/
Information and links pertaining to rehabilitation and to improving the , psychosocial well-being, education, and independent living of individuals. This site is funded by: National Institute on Disability and Rehabilitation Research Rehabilitation Research and Training Center in Neuromuscular Diseases>

Types of Muscular Dystrophy
http://www.umm.edu/nervous/musctype.htm
Information page created by the University of Maryland.


Neuropathy

ACN Online
http://www.latitudes.org/
exploring advanced and complementary non-toxic treatments for: Autism, Tourette syndrome, Attention deficit/ hyperactivity disorder and learning disabilities.

Neuropathy Association
http://www.neuropathy.org/
Provided here is information about neuropathy and links to neuropathy support groups.


Osteoporosis

Medline - Osteoporosis
http://www.nlm.nih.gov/medlineplus/osteoporosis.html
A complete listing of research, scholarly and information sites related to Osteoporosis provided by the U.S.. National Library of Medicine and the National Institutes of Health. Many links are provided here to informaiton including recent research, clinical trials, diagnosis of children and adults, coping strategies and treatments, organizations, statistics and specific concerns of people with osteoporosis.

National Institute of Health: Osteoporosis
http://www.osteo.org/
This site includes fact sheet, research bibliographies newsletter, search engine and links to other sites. The Nationa Insitute of Health maintains this site as part of its mission is to provide patients, health professionals, and the public with an important link to resources and information on metabolic bone diseases, including osteoporosis.

National Osteoporosis Foundation
http://www.nof.org/
Information on osteoporosis and its treatment, news and events, patient information and advocacy.

Osteoporosis and bone physiology
http://courses.washington.edu/bonephys/
Basic information for the general public provided by the Department of Medicine University of Washington. Factual andm understandable.

The Osteoporosis Center ~ Complete Osteoporosis Information
http://www.endocrineweb.com/osteoporosis/
While this is a commercial site, it is informative providing data on diagnosis of osteoporosis, bone formation, role of physical activity, importance of calcium, effects of menopause and drug and non-drug therapies.

Osteoporosis Tutorial
http://medlib.med.utah.edu/WebPath/TUTORIAL/OSTEO/OSTEOPOR.html
Minitutorial provided by the Florida State University College of Medicine in cooperation with the University of Utah's College of Medicine. Very helpful discussions of the disease with bibliography.


Spastic Diplegia

Analysis of microcephaly with spastic diplegia (Paine syndrome)
http://www.bork.embl-heidelberg.de/g2d/exam_disease.pl?U4434
MESH terms, and genome analyses of candidates.

Comparison of functional outcomes from orthopedic and neurosurgical interventions in spastic diplegia
http://www.neurosurgery.org/focus/jan98/4-1-2.html
Scholarly article from the Orthopaedic Research and Education Fund and the National Institutes of Neurologic Diseases and Stroke, National Institutes of Health


Spondylosis

AAOS Online Service Fact Sheet Cervical spondylosis
http://orthoinfo.aaos.org/fact/thr_report.cfm?Thread_ID=304&topcategory=Neck
One page fact sheet provided by the American Association of Orthapaedic Surgeons.

Cervical Spondylosis
http://www.md.huji.ac.il/mirrors/ortho/C/spondylosis/cervical.html
X-Ray images of Cervical Spondylosis patients.

Mediline - Spondylosis
http://www.nlm.nih.gov/medlineplus/ency/article/000436.htm
A complete listing of research, scholarly and information sites related to Spondylosis provided by the U.S.. Information here includes illustrations, definitions and causes, risk factors, symptons, treatment and complications. This site is provided by the National Library of Medicine and the National Institutes of Health.

What is Spondylosis?
http://www.nevdgp.org.au/ginf2/murtagh/Musculoskeletal/spondylosis.htm
One page fact sheet created by John Murtagh, Professor of General Practice, Monash University, Melbourne, Australia.

Wheeless' Textbook of Orthopaedics
http://www.ortho-u.net/o11/118.htm
Complete discussion on Spondylosis with links to additional articles on Cervical Stenosis: - Central Cord Syndrome, Soft Disc Protrusion, SCIWORA Syndrome, and Uncovertebral joints.


Traumatic Brain/Head Injury

The Center for Outcome Measurement in Brain Injury (COMBI) i
http://www.tbims.org/combi/drs/index.html
This is an online resource for those needing detailed information and support in regards to outcome measures for brain injuries. The measures included in the COMBI are commonly used in the field of brain injury. Included here is the the Disability Rating Scale (DRS) which was developed and tested with older juvenile and adult individuals with moderate and severe traumatic brain injury (TBI) in an inpatient rehabilitation setting. COMBI is a collaborative project of the National Insitute on Disability and Rehabilitiation Research.

Diagnosis and Treatment of Head Injury
http://www.snr-jnt.org/JournalNT/JNT(1-1)3.html
Brief but informative article on head injuries published in the Journal of Neurotherapy.

Family Caregivers Factsheet
http://www.caregiver.org/factsheets/head_statsC.html
Factsheet on selected head injury statistics

Management and Prognosis if Severe Traumatic Brain Injury
http://www.braintrauma.org/pdflibrary.nsf/Main/Guidelines/$File/Management+and+Prognosis+of+Severe+Traumatic+Brain+Injury+Preview.pdf
This scholarly two hundred and eighty-six page book online outlines the reasons for the need for detailed recording of surgical indications, as well as standardized reporting of indications for surgery. Extraerebral and intracerebral lesions are discusses as well as mortality among patients with acute subdural hematoma and extradural hematoma. Site is a PDF document. When printing use Adobe Acrobat's print symbol in the upper left hand corner.

Medline - Traumatic Brain Injury
http://www.nlm.nih.gov/medlineplus/headandbraininjuries.html
A complete listing of research, scholarly and information sites related to Traumatic Brain Injury provided by the U.S.. Information here includes illustrations, definitions and causes, risk factors, symptons, treatment and complications. This site is provided by the National Library of Medicine and the National Institutes of Health.

NINDS Traumatic Brain Injury Information Page
http://www.ninds.nih.gov/health_and_medical/disorders/tbi_doc.htm
Excellent site describing the definition, treatment and prognosis of traumatic brain injury. Site is maintained by National Institute of Neurological Disorders and Stroke, the nation's leading supporter of biomedical research on disorders of the brain and nervous system. NINDS also provides a site for Clinical Trials in Head Injury at http://www.ninds.nih.gov/news_and_events/headinjurywkshp.htm

Trauma, Emergency, and Intensive Care Neurosurgery Index
http://www.bgsm.edu/bgsm/surg-sci/ns/trauma.html
Many links to information and sites on rehabilitation and research. This site created by Department of Neurosurgery, Wake Forest University School of Medicine

Physical DisAbilities Website Links

Arthritis

Back Injuries and Pain

Bone Transplant

Carpal Tunnel Syndrome

Cerebral Palsy

Multiple Sclerosis

Muscular Dystrophy

Neuropathy

Osteoporosis

Spastic Diplegia

Spondylosis

Traumatic Head Injury

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